Sooke baby struggling with rare illness

Ethan is only six months old but in his short life span he has undergone six surgeries.

Sooke baby struggling with rare illness

Ethan is only six months old but in his short life span he has undergone six surgeries.

His parents, Kelly Steenbergen and Scott Cameron, who have no other children, have spent most of the last six months in hospital rooms trying to figure out what is wrong with their son.

When he was just two-months-old he began experiencing breathing complications and had no appetite. He was diagnosed with Congenital Lobar Emphysema, a rare non-hereditary birth defect with no known cause.

He spent six days in hospital where he was monitored and fed. In October he had his first major surgery to remove the upper lobe of his left lung. He did well and was sent home but by November he was once again in hospital for three weeks. Pain and difficulty breathing continued to plague the little guy and on Christmas Day he was operated on again to repair 10 tiny leaks in his lung from the original surgery. Chest tubes and surgeries became commonplace as were weeks in Vancouver while Ethan was in Children’s Hospital trying to heal. His surgeries may not be over yet.

Easter Seal House has been home to Kelly and Scott but their time is running out. Parents are allowed to stay for 30 days without paying but after that the cost goes to $40/day for the two of them.

Kelly is on maternity leave and Scott works in the logging industry. Both are longtime Sooke and Jordan River residents.

When spoken to on January 21, Kelly said, “He’s doing okay today, he still has his chest tubes in, but things are looking up. He’s a tough little guy. It’s amazing that with all he’s gone through he is still smiling.”

She said the family is doing good with the help of the amazing hospital, doctors and other parents going through medical issues with their kids, as well as the support of family and friends.

“We’re not alone,” she said.

“I heard they were getting strapped,” said family friend Diane McNeil. “They will be over there for quite a while yet.”

Knowing this McNeil is organizing a fundraiser for the young family to help them cope with the expense of travel, medicine and accommodation in Vancouver.

An auction will be held at the Sooke River Hotel on February 12 at 7 p.m.

Just Posted

SIG
Policing amid pandemic challenging, says Sooke’s top cop

Mounties document reduction in property crime and impaired driving

Patrick OLeary won $1 million in the March 24 draw of the Lotto 6/49. (BCLC image)
Sooke man cashes $1-million lottery ticket

The excavator operator had to look twice to confirm the win

Divyesh Nagarajan, third from the left, has founded the Be My Friend project to bring support and companionship to vulnerable youth and address North Saanich’s food security challenges. (Courtesy of Divyesh Nagarajan)
Greater Victoria teen looks to connect vulnerable youth with a buddy, bolster food security

Be My Friend project was founded by St. Michaels University School student Divyesh Nagarajan

The City of Victoria is proposing a northern contraction from Haultain Street to Bay Street with a western contraction from Cook Street to Chambers Street for Fernwood. (Illustration/Google Maps)
Community association calls for input on Victoria boundary changes

City of Victoria proposes changes to neighbourhood borders

B.C. Labour Minister Harry Bains in the B.C. legislature, May 13, 2019. (Hansard TV)
VIDEO: B.C. to provide 3 days of sick pay for COVID-19 absences

Province will support employers on cost, labour minister says

A nurse asks screening questions at an immunization appointment in Nanaimo earlier this year. (Shawn Wagar/Island Health photo)
Island Health appreciates nurses answering the call in challenging times

Health authority draws attention to National Nursing Week

BC Housing minister David Eby. (THE CANADIAN PRESS/Chad Hipolito)
Eby jabs back against Penticton mayor’s ad urging BC Premier to intervene in shelter dispute

Eby writes that Penticton’s ‘serious’ social issues won’t improve under leadership of the mayor

Provincial health officer Dr. Bonnie Henry updates B.C.’s COVID-19 situation at the B.C. legislature, April 29, 2021. (B.C. government)
B.C.’s COVID-19 rate creeps up again, 600 new cases Wednesday

One more death, 423 people in hospital with virus

B.C. Agriculture Minister Lana Popham takes questions in the B.C. legislature in 2017. (Hansard TV)
UPDATE: B.C. will fund another year of fresh fruit, vegetables, milk in schools

John Horgan government working on school meal program

Surrey RCMP is releasing sketches of a suspect in an “indecent act” at the Coyote Creek Elementary playground on April 30, 2021. Police said the suspect was clean-shaven “during some interactions” and on “other occasions had stubble outlining a goatee and mustache.” (Images: Surrey RCMP handout)
Vancouver mayor-elect Kennedy Stewart addresses supporters in Vancouver on Sunday, Oct. 21, 2018. THE CANADIAN PRESS/Darryl Dyck
Vancouver mayor says there’s no time to redo details of drug decriminalization plan

Kennedy Stewart says a federal election could see the small window of opportunity close on the city’s bid for an exemption from criminal provisions on simple possession of small amounts of drugs

Premier Mike Horgan received his first dose of a COVID-19 vaccine. (Facebook/John Horgan)
More than 50% of people eligible in B.C. have received 1st vaccine dose

‘We’ve made extraordinary progress together over the past few weeks,’ says Premier Horgan

Most Read