Shantee Anaquod pictured with her younger brother, Jonathan, before becoming sick. After two months of being bed ridden in a hospital, Anaquod gets to spend Christmas at home with her family. Submitted photo

Shantee Anaquod pictured with her younger brother, Jonathan, before becoming sick. After two months of being bed ridden in a hospital, Anaquod gets to spend Christmas at home with her family. Submitted photo

VIDEO: AHUS patient Shantee Anaquod is home for Christmas

Less than a month after receiving first dose of $750K drug, 23 year old healthy enough to go home

It’s a Christmas present Shantee Anaquod didn’t think she’d get.

Two months after being diagnosed with the rare blood disease Atypical Hemolytic Uremic Syndrome (aHUS), Shantee, 23, will get to spend the holidays at home with her family.

The UBC student has been in hospital since Oct. 15, when flu-like symptoms escalated into a life-threatening condition. The treatment used for the disease — Soliris — costs $750,000 per year to administer, and was not covered by extended medical or the government.

READ MORE: Langley mom pleads for help in securing $750,000 life-saving drug for daughter

READ MORE: Government approves funding of $750,000 drug for B.C. woman

But after a storm of media attention, the government agreed to finance the drug, and less than a month after her first dose, Shantee is well enough to return home.

“I was really excited — super excited — because I was just waiting to know when I was going to go home,” Shantee told the Langley Times during a Soliris appointment at Vancouver General Hospital on Tuesday.

“I have more energy, and I feel like I’m getting stronger, slowly, so that’s nice. I don’t have as much pain in my body.”

Shantee was officially discharged from the hospital in the afternoon on Dec. 14, and spent the first two nights at her mom’s house. Last weekend, she was able to return to her rental in Vancouver, where she lives with three roommates.

“It was pretty great, I got a lot of sleep and got to do what I want,” Shantee said of her first night home. “It’s a little harder managing everything without a nurse … but my boyfriend helps me out quite a bit, though. He brings me food and makes sure that I can get up the stairs.”

Equally as excited about Shantee’s recovery is her family. Shantee’s brother, Jonathan, 9, made it his birthday and Christmas wish to have his sister home for the holidays.

“Just her being home, the idea of not having to celebrate Christmas in the hospital or bring her out on a day pass is phenomenal,” said her mother, Jennifer.

“And she’s been looking at turkey recipes for the last three weeks, she’s determined to cook the turkey this year.

“It’s been pretty great watching her get a little bit better every week.”

No one, including Shantee, knew that she would be discharged from hospital so soon. She still has to take a significant amount of medication every day, and undergo dialysis three to four times per week. Her Soliris dosage — which takes about an hour to administer — will now be reduced from once a week to every second week.

She also lost 25 pounds in the last two months, and has to work on gaining back her weight and strength.

“They had told us (she would be discharged) Wednesday (Dec. 13), and then Wednesday came and they said, ‘No you can’t go. Your breathing is not good enough yet, maybe we’ll look at Friday or Saturday,’” Jennifer told the Langley Times last week.

“And then she called me yesterday (Dec. 14) — I was at my staff luncheon — and said, ‘I’m going. They’re discharging me, I’m going home.’

“I was like, ‘What?’ So yeah, we had no idea.”

To make the holidays even better, Jennifer has her own homecoming to celebrate.

As she coped with Shantee’s medical battle, Jennifer also had to deal with another emergency at her house in Langley. Shortly before Shantee became ill, her neighbour’s hot water tank exploded and flooded her home. Jennifer and Jonathan spent the last couple of months in a furnished apartment in Langley City provided by her insurance.

Just a couple of weeks ago, they finally moved into a new, permanent home at a co-op in Surrey.

“I don’t know how it happened. Usually the waiting list is years, but for whatever reason, they called and we got in. So that was really well timed,” Jennifer said.

READ MORE: Langley teen seeks funding for $750,000 drug Soliris

Now, the Anaquod family is paying it forward by helping others with medical struggles. They are using what they learned through the process of obtaining Soliris to advocate for six-year-old Landen Alexa from Sooke, who is in need of a $19,000-per-month drug to treat Systemic Juvinile Idiopathic Arthrits.

Charity Cassie+Friends has been campaigning on behalf of Landen, and it just so happens that the same charity helped out Jonathan through treatments for his rare disorder, Behcet’s disease.

READ MORE: Six-year-old boy needs $19,000 a month to treat rare form of arthritis

“How things work behind the scenes was really surprising. And knowing there’s so much red tape and so many barriers to access medications and health care, for not just Shantee, but for so many people out there. I think that’s really, it was shocking to me,” Jennifer said.

“There’s been quite a few people reaching out already, so I try to connect with everybody that I can. I wish I had a magic answer.”



miranda@langleytimes.com

Like us on Facebook and follow us on Twitter

Just Posted

Sasha Perron of Langford is preparing to run a half marathon on Saturday, 10 kilometres Sunday, 21.5 km on Tuesday and so on until he’s totalled 216 kilometres. (Jake Romphf/News Staff)
Indigenous man to run 215 kilometres, plus one for children waiting to be found

Donations to Sasha Perron’s fundraiser to benefit Indian Residential School Survivors Society

Victoria police are searching for high-risk missing woman Chloe Morrison who was last seen in Victoria June 13. (Courtesy of VicPD)
MISSING: Chloe Morrison, last seen in Victoria

Morrison, 25, was last seen shortly after 2 p.m. June 13

Proposed design for the Topaz Park bike and skate park elements. (Courtesy City of Victoria)
Victoria requesting feedback on Topaz Park redesign

Public input now being taken for proposed skate, bike park ideas

Processed sewage is still being deposited at the Hartland landfill rather than sent as biosolids to a Richmond cement plant. (Black Press Media file photo)
Biosolids at Hartland still being placed on landfill in Saanich

Richmond cement plant up and running, but CRD end product not suitable for purpose

Saanich Neighbourhood Place is hoping to open the doors to its new centre in July, pending final council approval. (Black Press Media file photo)
Saanich childcare agency awaits final approval on much-needed new facility

Saanich Neighbourhood Place keen to open new centre this summer, expand options for community

People watch a car burn during a riot following game 7 of the NHL Stanley Cup final in downtown Vancouver, B.C., in this June 15, 2011 photo. THE CANADIAN PRESS/Geoff Howe
10 years ago: Where were you during the 2011 Vancouver Stanley Cup Riots?

Smashed-in storefronts, looting, garbage can fires and overturned cars some of the damage remembered today

Port Alberni court house (Alberni Valley News)
Inquest set into 2016 death of B.C. teen after a day spent in police custody

18-year-old Jocelyn George died of heart failure in hospital after spending time in jail cell

Children’s shoes and flowers are shown after being placed outside the Ontario legislature in Toronto on Monday, May 31, 2021. THE CANADIAN PRESS/Frank Gunn
Ontario commits $10 million to investigate burial sites at residential schools

Truth and Reconciliation Commission identified 12 locations of unmarked burial sites in Ontario

Singer-songwriter Jann Arden is pictured with a draft horse. (Canadian Horse Defence Coalition)
Jann Arden backs petition to stop ‘appalling’ live horse export, slaughter

June 14 is the International Day to End Live Export of Animals

Two hundred and fifteen lights are placed on the lawn outside the Residential School in Kamloops, B.C., Saturday, June, 13, 2021. The remains of 215 children were discovered buried near the former Kamloops Indian Residential School earlier this month. THE CANADIAN PRESS/Jonathan Hayward
Days after Kamloops remains discovery, Tk’emlups families gather to unite, move ahead

‘We have to work together because this is going to be setting a precedent for the rest of the country’

In this Saturday, May 29, 2021, file photo, people crowd the Santa Monica Pier in Santa Monica, Calif. California, the first state in America to put in place a coronavirus lockdown, is now turning a page on the pandemic. Most of California’s coronavirus restrictions will disappear Tuesday, June 15, 2021. (AP Photo/Damian Dovarganes, File)
With COVID tamed, it’s a ‘grand reopening’ in California

No more state rules on social distancing, no more limits on capacity, no more mandatory masks

Montreal Canadiens goaltender Carey Price (31) is scored on by Vegas Golden Knights defenseman Alec Martinez, not pictured, during the second period in Game 1 of an NHL hockey Stanley Cup semifinal playoff series Monday, June 14, 2021, in Las Vegas. (AP Photo/John Locher)
Habs fall 4-1 to Vegas Golden Knights in Game 1 of NHL semifinal series

Match was Montreal’s first game outside of Canada in 2021

Kelowna-Lake Country MLA Norm Letnick, assistant deputy speaker at the B.C. legislature, presides over committee discussions. The legislature is completing its delayed spring session this week, with most MLAs participating by video conference. (Hansard TV)
B.C.’s daily COVID-19 infections dip below 100 over weekend

Only 68 new cases recorded Monday, four additional deaths

Neighbours fight a small late-night bush fire with garden hoses and shovels in Cinnabar Valley on June 5. They couldn’t get help from local fire services because the fire was located in an area under B.C. Wildfire Services jurisdiction. (Photo courtesy Muriel Wells)
Neighbours on edge of Nanaimo city limits left to put out bush fire themselves

Cinnabar Valley residents tackle fire with hoses and buckets for two and a half hours

Most Read