In response to: Lyme sufferer contiunues battle for diagnosis,” Sooke News Mirror, April 27, 2011.
Nicole and her family are brave souls.
Many British Columbians will be saved from pointless suffering because of the awareness they raise.
The fact is that our doctors do not know how to diagnose nor treat this disease (as stated in the Schmidt report.) There are many in this family’s situation but they are afraid to speak out. Patients who “think” they have Lyme are dealt with with exasperation by many doctors because they cannot diagnose the condition. If a patient is sick for long enough without an apparent cause, the patient gets labeled as a hypochondriac or just “depressed.” Emotional reactions toward these patients from exasperated doctors leave patients with little hope of treatment or cure. Continually going back to these doctors is like banging your head on a brick wall, so most just leave and pay for treatment out of country.
The BCCDC says Lyme is rare here, in BC. I guess they are correct as most patients with Lyme do leave the country for treatment.
Thank-you for educating and informing your B.C. residents of the reality of tick borne infections, like Lyme.
My children and myself have no voice with the doctors here in B.C. We have suffered rising medical costs (by being forced to travel out-of-country); debilating chronic fatigue and poor memory (must homeschool my teenage daughter); job loss and discrimination from my Canadian doctors.
I feel for this family and their plight to obtain treatment for their daughter. There is no benefit to our country, economic or otherwise, to pretend this disease doesn’t exist here.
Train the doctors to suspect Lyme based on clinical diagnosis, instead of seriously flawed blood tests.
CanLymies 2 wrote:
Here is another government report in an eastern U.S. state just published today:
“The medical community, ranging from physicians to medical research institutes, have varied perceptions of Lyme disease and appropriate treatment methods,” said the report released yesterday by the House Committee on Post Audit and Oversight led by state Rep. David Linsky, D-Natick.
The report said that since insurance companies rely on the Infectious Diseases Society of America’s guidelines for Lyme treatment of 28 days, people suffering chronic symptoms might not receive coverage for care and medication.
“Insurance companies in Massachusetts have typically followed IDSA guidelines rather than (International Lyme and Associated Diseases Society’s) and therefore patients being prescribed treatment for longer than 28 days often have their treatment denied by the insurance companies,” the report states.
Google Metro West Daily News Cases of Lyme disease handled inconsistently.
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